I cannot believe it has been so long since I last posted. Let's see...a good bit has happened. I ended up switching Endo docs because, well, to put it nicely, I just wasn't getting the care I deserve as a patient. I am now going to a clinic that specializes in pit gland disorders such as Cushing's. I started in November and in my first visit, felt like I got more information that I had in a year with my old doctor. I was told that the dosage of steroids I had been on for the past several months was way too high for my body size and she was not surprised one bit that I wasn't feeling any relief from the Cushing's symptoms. She said she had no way to confirm I hadn't relapsed or that the tumor wasn't fully removed in the first place at that point but had strong suspicions that my lack of freedom from symptoms was steroid-related. So, we started a wean. Luckily, my body has reacted well thus far. Don't get me wrong, I still feel the aches and pains that come along with coming off steroids but I haven't been sick-sick. I am now on 10mg per day and hoping to keep on the downhill slope. I am still being tested regularly.
I did have a major set back in December. I ruptured 2 discs in my back and had to have surgery 2 days before Christmas. Then, shortly after surgery, learned they accidentally left a piece of the surgical tube in my back and had to have surgery yet again. Happy Holidays, huh? lol
So...that combined with the weaning process has not been fun but I think..maybe...just maybe I am starting to see a small light at the end of this tunnel I've been in for years now. I am hopeful anyways.
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