Long time no post...

To say recovery from Cushing's is rough is quite the under statement. To catch up, my endo stopped my steroid replacement in May.  All my tests were 'normal'---how many times do Cushing's patients hear that even when you know something isn't quite right? Anyways, about a week later, I lost my appetite.  Just couldn't eat...nothing sounded good and I was just never hungry.  Shortly after, I developed diarrehea like I had the flu. Then, the nausea and vomitting started.  The vomitting was strange because it wasn't every day but almost every other day and it was violent.  I'd puke all day long.  Miserable doesn't begin to describe it.  It was the never ending flu.  I called my endo and was basically told this had nothing to do with Cushing's, surgery or recovery.  Basically, I just had a 'cold.'  The symptoms didn't stop, I was feeling worse every day.  I ended up going to my general practioner hoping for at least something for the nausea.  He said he didn't know what was wrong but suspected a bacterial infection in my intestines.  He gave me a strong anti-biotic and medicine for the nausea.  The anti-biotic just made me feel sicker and I ended up puking more.  The symptoms weren't relieved at all.  The anti-nausea meds weren't touching this.  Another week passes and I end up at my surgeon's office.  They wanted to rule out needing a CT scan since I did have surgery on my brain and was staying so nauseated.  He determined it was nothing to do with the surgery and said I need to see a gastronologist.  I was referred immediatley and yet again, this doctor was stumped.  All the symptoms of an infection, yet no fever.  I was dehydrated at this point so he sent me to the ER to get fluids and labwork.  At the ER, they determined I was very dehydrated..2 bags of fluids and still couldn't pee..I was pretty 'dried' out to say the least.  They also said I had a urinary tract infection and put me back on anti-biotics.  I had no other symptoms of the UTI, which was odd but I did as they said and took the anti-biotics hoping I would start to feel better.  No such luck..a week later I was back in the ER for the nausea, vomitting and diarrhea.  I told them I was concerned about adrenal insufficiency and about my Cushing's, etc.  The ER doctor was not all that familiar (imagine that) but was smart enough to check my thyroid and cortisol levels, etc.  Turns out, my thyroid was low, even though I am on medication for it and my cortisol was 'normal' for a normal person but should have been higher given how sick I've been.  He called my endo doctor who had them give me a shot of a cortisteroid and give me a prescription for more.  It was a miracle..I was feeling better in just a day. It was like my body was saying 'Thank you, Lord' for giving it what it so desperatley needed.  I went to my endo's office on Monday and they ran a bunch of test.  Today, we found out that my pit gland is damaged.  Either from the tumor itself or when they removed it during the surgery.  It was damaged along the way and basically the pit gland doesn't like to be 'touched'...so now, it is not producing ACTH and I need to stay on the steroid replacement for quite a while.  While I am not happy about yet another 'bump' in the road but am so relieved to know why I got so sick and that there is something that can be done about it.  I am still a long way from being well but at least I am back to normal 'crappy' and not death-like crappy.