So..wow. It has been a long time since I posted.  I guess I have good news and bad news for those wanting to know about Life post Cushing's.  The good news first...I am finally really looking better.  As in, I get daily compliments on how I look like the 'old' me.  For someone who deals with Cushings, that may just be the ultimate compliment.  It is especially nice when I run into someone I've known a long time that never knew I was that sick, for them to recognize me is an amazing feeling.  To someone who has never dealt with Cushing's...that sounds crazy but when my disease was at its peak, I'd see people I've known my entire life and it would take them a minute to recognize me and once they did, give me a look of horror like I had been in some horrid accident.  Looking at pictures from that time, I can't say I blame them because I didn't really recognize myself either.  So, my hair is now back fully and growing like crazy, my skin is clear and my face is thin.  I've lost more than 50 lbs and on the outside, I am well on my way to feeling like a normal woman again.  Of course, Cushings left many, many physical scars that I can do nothing about and no amount of weight lost will change.  So, unless I win the lottery and can hire a world-renowned plastic surgeon, I am stuck with that part of me.  The bright side is clothes can cover all that.
The bad news?  Well, I still have pain every single day.  I find that I cry when I stop & really think about it.  I cry because at this point, I cannot remember the last time I had a day where no pain existed.  I mean, I know they did.  I know my youth and young adult life was filled with energy and abundant pain-free days, yet I cannot recall what that felt like.  My body aches relentlessly, some days all over and some days one part more than the other...it is very strange.  When I compare to 2 years ago, I have much more energy than I did then so I know I am making progress, however, it is slow.  I am 34 years old and I feel 70 most days.  It makes me angry to be honest...I feel cheated on the prime years of my life.  I have a 10 yr old son and I feel like he has been cheated, too...a Mom who just can't go like the other Moms.  Thankfully, he is an old soul and is content doing just whatever....he is such a joy.  As for the pain, I've mentioned it to my doctor and she assures me it is normal.  I went so long without a diagnosis and my body was damaged..add that to extra Cortisol it was getting then it all suddenly went away, leaving me with the damage.  She compares it to a drug addict going through withdrawals.  She said she has seen her patients have this type of discomfort for years but says it does get better.  As much as I want to believe her (everything else she has said has come true)...a part of me fears greatly that I will have to deal with discomfort forever.
The hardest part for those around me is the fact that I do look so much better than 2 years, 1 year ago.  They see this drastic change in my phsyical appearance and so they assume I am healed, all better.  The ones that I have shared my ongoing issues with have been very supportive but I don't want to burden anyone so I mostly keep it to myself. 
I have to keep positive though and look back to where I was and where I am...there IS progress so maybe in 2 more years, I can write that my insides match my outside.  I will keep praying for that and for some sort of preventative medicine or routine test that would catch this nasty disease early.  It breaks my heart for everyone touched by Cushings...